Thursday, September 30, 2010
So far she's been a trooper!
We are happy to report that the surgery went well and so far the recovery has been going better than we had expected. Today Wyndham was able to keep down liquids and later ate soft foods for dinner. She has tolerated oral pain meds and has had minimal nausea. I have no doubt that the prayers said on her behalf are the reason she is doing so well at this phase in the whole process. Chip even took her to a little "party" down the hall from her room where the Michigan Whitecaps mascot and a couple of players were visiting patients at her Children's hospital. She even gave the mascot a high 5. I have to admit I was more than surprised to hear that from Chip.
We're hopeful that she will do well through the night tonight and we'll get an update from her surgeon when he does rounds in the morning. It's possible she could be home as early as tomorrow. We so appreciate your thoughts and prayers and truly believe that they are helping to speed the recovery process and also are keeping the stress levels of all of us to a minimum.
Hopefully I'll be posting about Wyndham's homecoming sooner than we thought!
Wednesday, September 29, 2010
Trading places...
Monday, September 27, 2010
Sometimes life gets a little more challenging...
We (Chip and I) have known this day was coming for a long while now, but that doesn't make it any easier. I know that many of you will be praying for her, for her doctors, and for all our family as we help care for Wyndham during her recovery. It will be a long process and I just wanted to share what is involved.
Wyndham will be undergoing double-foot realignment surgery which will hopefully resolve the issue of her feet turning more and more outward. Left untreated, she faces problems with bone formation as well as ongoing and long-term chronic pain in her joints, back, spine and neck.
The surgery itself will take approximately 5 hours. It involves taking a bone graft from her pelvic bone and placing a wedge of that bone on the outer side of both her feet, and then the tendons in the back of each leg will be lengthened too.
We are most concerned with how Wyndham will come out of the recovery itself and then in order to be discharged from the hospital she needs to be taking oral meds for managing her pain. On both counts we have concerns because of how Wyndham has done in the past. She typically has a weak stomach and can have extreme nauseau. She also has issues with swallowing pills
and so we anticpate that she may have a longer hospital stay than the expected 2 day stay.
Once she comes home we are not totally sure what to expect as far as how challenging her needs will be. She will be in casts for a minimum of 8 weeks, and could face another 4 weeks beyond that, and then she will be fitted for orthodics. We will be her primary caregivers and know that it is going to be demanding on her and the rest of us. That is why we so appreciate your prayers in the coming days and weeks.
This all stems from her original brain injury sustained as a young infant in the Old Depot tragedy. We have watched Wyndham go through so many medical procedures and therapy/rehab for over 9 years now and sometimes we just feel tired and sad when we
think about what she has yet to face. Still, we are trusting in the God that has healed her in the past and hoping that He will give her more grace and mercy as she endures more pain and recovery.
Sometimes it just feels so unfair and it definitely tugs at our hearts to have to be at her side as she undergoes yet another struggle. But we're thankful to be her parents and family; we feel lucky that this will be her first major surgery since her shunt was placed and she's enjoyed many happy days that some doctors wondered if she'd ever have at all.
We hope that the next couple of months will be opportunity for our family to become stronger, to lean harder on the God in whom we trust, and a good reminder to never take the simple, "ordinary days" we have for granted. They are special and we look forward to having many more of them with Wyndham and all our other kids too.
I will be posting frequent updates on my Face Book wall as well as occasional blogposts here too. Fell free to stay in-the-loop with us as we go through these challenges with Wyndham.
We appreciate your love, prayers, thoughts and cares every step of the way!
Jody & Chip and family too
Friday, September 24, 2010
To my readers...
Happy Autumn!
Wednesday, September 22, 2010
Right now...
Saturday, September 18, 2010
My bitty bear...
Friday, September 10, 2010
Three weeks...
Tuesday, September 07, 2010
Mixed emotions.
This morning as we woke early {compared to the past several weeks of sleeping in until whenever this summer} to get ready to send Brock, Bella and Ava off to their first day of school I thought the hardest part was going to be the waking early part. It turns out that it wasn't the hard part at all. The kids were excited, their clothes and backpacks were laid out and ready to go and I simply had to make and pack their lunchboxes and they were basically all set. Ready to take on middle school, third and first grades- respectively.
Chip helped get them into the car with all their school supplies, backpacks and lunch bags and then they headed off. That's when I turned back to head inside and start the day with the other three at home- Wyndham, Crew and Teague. All three of them needed soggy, saggy diapers changed and after I re-tucked Wyndham in for some extra morning sleep time {she loves to sleep in and would do so til noon each day if we let her} and tossed her pull-up in the trash I felt the tears starting to sting my eyes. I finally let the emotions fill me and hit me and overwhelm me and then I let the tears fall. I felt the hurt this morning like I haven't felt in a long time. This time the tears stung my eyes and my heart ached- not for missing the kids I sent to school and realizing how much they are growing up, but instead I hurt for Wyndham and what she will never experience.
In the past I have hurt for missing Teagan and wondering how grown she would be and imagining what kind of backpack and clothes she would have picked out to start the schoolyear. This year I am hurting for two girls who didn't start school with their siblings. I hurt for the dreams that I had for them when they were tiny newborns- like Teague is in my arms these days. I let the tears fall for the emptiness I feel for what will never be, and what I still wish I could change on mornings such as these. I would wish it so different. I ache for once holding Teagan and Wyndham's little heads steady as they started to develop the strength to hold their own heads up, and I wished the world for them- just as I do for all my kids. I always hoped to be the mom who could be there to help mold and guide my kids into the potential that welled up in them from the time they were tiny babes. I always imagined that I would be there for their mountaintop experiences, as well as all the milestones in between.
Today is a day for mixed emotions. On one hand I am thrilled for my kids and the education and opportunities that await them. I once felt like I wanted to keep my kids home; close to me and safe forever, but soon realized that that only holds kids back. What I really want for my kids is a place for them to grow and blossom and be challenged in order that they might become all they are meant to be. Today Wyndham didn't get that chance, and it's yet another year that I face the fact that Teagan had her earthly dreams taken from her at such a young age too. It's a day of mixed hurt and feelings and I simply had to write it down here- just to get it out.
For me, writing it down {It hurts... I hurt... it's not fair... I wish it were different... I ache for Wyndham...} and letting the tears fall is part of the healing process that I find I still need. Especially on days like this. The process of grief goes on- just as the years and seasons change. Recognizing that we have had dreams shatter and change and then accepting the reality of what is now is simply a part of our lives now. I know a lot of moms who are shedding tears today as they send their little ones off to school for the first time... or the 10th. They ache and it is expected. But I have to say that what hurts more than sending a little loved on off to school is not being able to send them off to school. In a few weeks Wyndham will be prepping for her double-foot realignment surgery. Her life is about to take on a whole new level of pain and suffering and challenge and that makes my heart ache so much.
I wish she could have come to the store with Bella and Ava and picked out new shoes and clothes and a backpack for school. But for whatever reason, her life is taking her on a different journey. I let the tears fall today, but my hope for her is to still give her the best this world has to offer her- even though it doesn't look the way I had hoped and dreamed it would be. I don't know that writing this all out does anything for any of you, but I would appreciate if some of you helped share our 'burdens' and prayed with us to be hopeful even on the days that hurt. Especially on the days that hurt.
My heart is still full for the 3 kids we did send off to school this morning. I felt blessed- even as I changed 3 diapers of the other kids this morning, that I had them in my life to love and care for and to hold and show love to. I am a lucky mom and I never want to take motherhood for granted. The mixed emotions are a part of being a parent- as many of you already know. I just didn't expect the wave of emtions to flood over me like they did just now. And I hope that just as tears flow from hurt, I can expect tears of happiness to flood over me in the days and years to come too. True, Wyndham didn't wake up to get ready for her first day back to school. But she is still here and she can hug me and laugh with all of us and I get to brush her thick hair after her bath in just a bit and she dances with her daddy before bedtime each night and she is a bright, shining star in our lives no matter what she does. I can't change what has happened to her and I still wish I knew more about who Teagan would be at this point in her life; but accepting it all as it is is shaping and changing me to be different than I imagined and dreamed I'd be too. I am choosing to trust that despite the occasional tears we're all challenged to be better than what we would have been if our lives had simply stayed on a "safe path". I am choosing to trust- yet again- that God knew all this in advance and He is holding us and guiding us through the challenges and just as a parent to their child, He has big hopes and dreams for us and will see to it that we grow into the full potential He has given each of us. His ways are higher and I'm so glad they are. My mixed emotions are another reminder to me that I need to lean on Him and trust Him fully. Joy or pain... He understands it all. For that gives me real comfort and peace. Even on these mixed up, emotional kind of days.