Tuesday, July 13, 2010

Update to previous post...

Thanks so much for your thoughts and prayers for Wyndham today. She received a great report for now- no growth hormone shots needed for at least another six months! We're so happy for her to continue to be able to skip these nightly injections and we're going to keep hoping that her body will keep doing what its doing and stay on curve with her growth.
The short story is that her pituitary gland was damaged in her initial brain injury and for the first year after the incident she didn't grow at all. She has been behind on her growth and been playing 'catch up' for several years and just this past year showed a nice pace on the growth charts. The doctors feel it may be early puberty that is the explanation for her body being able to maintain this growth (even though it has slowed some the past 6 months) and they are going to keep an eye on how things continue to go. Thus, no need for shots right now. Hooray!
This report made me think back to one of the first scrap pages I ever made- one about our hopes and dreams for Wyndham despite all she is up against. I am humbled and grateful- yet again- that God has brought her this far and it is just the little bit of "good news" I need as we face her major surgery in just a couple of months. I am dreading it for her- but again, I know the best thing we can do for her is pour out our love and care and most of all never stop hoping for the best!
Finally I just have to ask... is it just me, or does Wyndham have an amazing smile?! I love it on her so much and feel blessed to see it on her every day. =)

19 comments:

Kouper Shane said...

Her smile, her eyes, her hair... they all can TOTALLY light up a room! (Well obviously I've never witnessed that, but I know it's true!) I'm so happy for your good news. I keep up with you guys via your blog. You're all such fabulous inspirations!

Deb said...

SO happy for you guys! If anyone deserves good news, it's Wyndham and her family. Hope you are enjoying the summer and are surrounded by people you love and the things that bring you happiness:)

Dana said...

Great news! And yes, she does have an awesome smile. Love your page too....so wonderful!

Anonymous said...

*Love* this lo of Wyndham...and that is an adorable picture of her! Thanks for sharing the good news too...we will pray that it continues for her as she grows.

Rhonda :)

Anonymous said...

Awesome news!

LaVon Baker said...

Wyndam DOES have a beautiful smile and light in her eyes. Praise God for no more nightly needles!

Kelly @ Sufficient Grace Ministries said...

Grateful for this good news...and yes, her smile is beautiful and the light in her eyes shines forth with equal beauty...

Continued prayers...

Lauren said...

So happy to hear great news! That photo of Wyndham is just beautiful!!!! :)

Kerry said...

So happy the news was good. Always think of you and your family and say a prayer for all of you!

Karey said...

Greaat News! Thanks to GOD!!!

Anonymous said...

That smile is breath taking !!!

Rosemary P. said...

Her smile is beautiful. It is her eyes that go right through me...she is speaking with those beautiful eyes.

Marie said...

This picture is just beautiful of Wyndham..our family is so happy about the good news. I continue to keep her and the family in my daily prayers. Your writing is such an inspiration and your love of God feels my heart.

babyrndeb said...

I love this picture of Wyndham - the poofy hair and big smile - she is sooo beautiful!!

jo said...

yeahhhhhh you scrapped!!!!!

love you jods and wish we were eating lemon squares on your porch :)
xxxx

Karen said...

Not only does she have a great smile, but she has great eyes. They seem to hold something so deep, something that only she knows, only she posseses.
What a blessing she and all of your children must be to you!
Prayerful that good news will continue for Wyndham and all of you!

Chatty Chappy said...

Awesome news! So happy for you and this news couldn't come at a better time as you prepare for your adventure with another addition! I enjoy reading your posts so much and wish you nothing but the best!

E said...

I hope you see this comment...I recently found your blog from your comment on someone's Facebook page (I'm thinking Jen Hatmaker or someone similar?) regarding Coke Float Day. We're having a Hymn Sing at our church on Thursday, with a dessert bar afterwards, and I was planning on taking a tub of vanilla and some bottles of Coke, with cups and spoons. I Googled cfd so I could find your explanation and maybe print it out on a little sign beside the "fixins", so people could know what a precious thing it was. And then I started to read other posts. And I kept reading. And here it is, 1:35 am EDT, and I'm still reading. And then, I found this post. Our oldest daughter was born in 2006 with congenital panhypopituitarism, so we know well the bedtime routine of gh injections and other medications. (She is healthy and thriving...I'm so thankful for God's covering.) Praying your dear Wyndham is continuing to thrive, as well. I will have to save follow-up reading for another day. Much love to you, from another mama in the trenches.

E said...

I hope you see this comment...I recently found your blog from your comment on someone's Facebook page (I'm thinking Jen Hatmaker or someone similar?) regarding Coke Float Day. We're having a Hymn Sing at our church on Thursday, with a dessert bar afterwards, and I was planning on taking a tub of vanilla and some bottles of Coke, with cups and spoons. I Googled cfd so I could find your explanation and maybe print it out on a little sign beside the "fixins", so people could know what a precious thing it was. And then I started to read other posts. And I kept reading. And here it is, 1:35 am EDT, and I'm still reading. And then, I found this post. Our oldest daughter was born in 2006 with congenital panhypopituitarism, so we know well the bedtime routine of gh injections and other medications. (She is healthy and thriving...I'm so thankful for God's covering.) Praying your dear Wyndham is continuing to thrive, as well. I will have to save follow-up reading for another day. Much love to you, from another mama in the trenches.